Posts tagged ‘Giving back ‘




You live a crazy life


This past year, close to Christmas, I made the “mistake” of taking a “friend” along with me to get some things that I would be dropping at the Ronald McDonald House.  (I warn you, I will be using “quotations” a LOT during this post as there are a lot of words I am using LOOSELY.  I say “mistake” because it wasn’t a mistake at first, but I soon realized it really was.  And I say “friend” because as this tale unfolds you will realize she’s not a friend, and she never really had been.)  Wal-Mart was busy and I was whipping my cart down the aisles ready to be anywhere but there.  I picked up some Tupperware, a card, and then went to pick out some sprinkles and frosting for some cookies. 

Said “friend” was on the phone the whole time we were there.  Never mind the fact that I hadn’t seen her in months, but I wanted her help and her opinions.  She finally hung up and I was explaining that I needed a few more boxes of spaghetti, another jar of sauce and then I needed to pick out stuff so that the kids could decorate the cookies.  (I was dropping off cookies at RMH and I wanted to bring the things to decorate them so if there were older siblings at the house they would have something fun to do.)  And as I’m explaining all of this, and my schedule for the next week, “friend” says, “You live a crazy life.”

It probably shouldn’t have hit me as deeply as it did but, it left some questions in my mind.  “My life is crazy because I bring my child with a terminal illness to the doctors?” (I mean, yeah, we go a lot but they are all necessary appointments.)  “My life is crazy because I’VE been in the Ronald McDonald House and know what would have helped me, so I’m crazy to give back to them what I think could help someone else?”  “My life is crazy because this year I have money to help someone else and I WANT to?”

No.  Your life is crazy.  (Let’s not talk about the fact that you don’t care about humanity unless they are directly affecting you, or the fact that the most serious thing you’ve ever had to deal with in your life is a bad break up, orrrrr the fact that you could never be bothered to take a moment out of your drama filled life to give back.) 

That is my normal.  The Dr’s appointments, (even around Christmas!) talking about people I’ve met online that have been where I am in my life, and giving back whenever I can.  Reaching out because there is a possibility that I might touch someone else’s heart when I do.  Busy, yes.  Crazy?  Absolutely not. 

I’m sure it’s hard for people to understand why I talk so much about Ava and her CHD and about the wonderful people I’ve met online and all of their sweet babies.  I talk so maybe you can TRY to understand, just a little.  I talk so you’re aware.  I talk about the people I meet because they mean a lot to me.  I follow along with their journeys.  They let me into their life, a VERY personal aspect of their life, and I treasure that.  I love that these people have given me a chance to watch them, and their children grow.  I love to watch the awareness they raise, and the next steps in their lives.  Living day to day with a kid with a Congenital Heart Defect IS hard, but there is a lot about it that I LOVE.  I love that I have opened my eyes to the needs of the world around me.  I love so many people I have met along the way in our journey.  I love the energy I have for life now.  I do not live a “crazy life” I simply live a more enriched life now that Ava is in it.

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2 comments February 7, 2011

Congenital Heart Defect Awareness

Congenital Heart Defect Awareness

Congenital Heart Defect Awareness Congenital Heart Defects Life with a CHD Tricuspid Atresia Uncategorized

Life with a CHD

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