Posts tagged ‘found out diagnosis tricuspid atresia problem surgery ‘


Two weeks prior to my 19th birthday Ava’s heart defect was confirmed.  I had an amniocentisis done on this day, also, to check for any other problems.  (Genetics, Downs Syndrome, etc..)  The amniocentisis was the most physically painful thing I have been through in my life, yes worse than labor!!

“We”ll call in about 2 weeks with the full results.”  That will stick in my head for the rest of my life.  I KNEW they would call on my birthday.  It couldn’t be the day before or the day after.  I was sitting around all day waiting for that call.  It was 3:50 and I was sitting in the living room with Ben and my mom, just lounging.  My phane rang.

“Hi Megan, I have good news, and I have good news,” the nurse said.  “Whew!” I thought.  “There are absolutely no other in-normalities with the baby.  She looks healthy as can be besides her heart, which was not genetic.  And, you’re definately having a girl!”  She sounded so happy, and I was relieved, but no one wants a call from a genetisist on their birthday concerning their unborn child.  But, it WAS good news.

I’ve learned that there are many other children out there that are not as lucky as Ava is.  Many, MANY times a Congenital Heart Defect brings about other ailments.  They do not CAUSE these things, but sometimes they are accompanied by Down Syndrome, Spina Bifida, the list just goes on and on.  It’s so sad.  These poor babies have to endure OPEN HEART SURGERY and many others need additional surgeries due to other problems that happened during gestation.  They are NOT the parent’s faults–but will forever be their responsibilities.

So that call came on the worst possible day, but that nurse could not have given me any happier news.  (Unless, at the time she was a boy–that’s what we “wanted” but now we’re so glad we have our little Ava Bean.)


6 comments September 2, 2010

Congenital Heart Defect Awareness

Congenital Heart Defect Awareness

Congenital Heart Defect Awareness Congenital Heart Defects Life with a CHD Tricuspid Atresia Uncategorized

Life with a CHD

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